Health Links
Links of Interest
Many, many thanks to Marcia Zorn from the National Library of Medicine, National Institute of Health, for passing on these links. Do you have any favorite links you wish to share? Please pass them on to Rodney and Shannon.
AGED / ELDERLY / LIFE COURSE / ALZHEIMER’S
Improving the Aging Experience through Innovation & Technology (Eric Dishman 36 slides 10/18/2006) http://www.itl.nist.gov/Healthcare%20Summit/panel%201/CASTNISTconfDishman101806.pdf
BEHAVIORAL / SOCIAL SCIENCE / PSYCHOLOGY
Social Science Research Network searchable database http://papers.ssrn.com/sol3/DisplayAbstractSearch.cfm
Stories about Elizabeth Edwards’ breast cancer & Tony Snow’s colon cancer have led some news organizations to offer recommendations about cancer screening. But some of the recommendations are not based on evidence…[more] Health News Reviews Publisher's Corner (created 3-30-2007) http://www.healthnewsreview.org/view_content/detail.php?type=PublishersNote&id=25
COMPUTER-MEDIATED COMM (CMC) / HUMAN-COMPUTER INTERACTION (HCI) / WEB METRICS
The Online Disinhibition Effect (John Suler's The Psychology of Cyberspace)
http://www.rider.edu/~suler/psycyber/disinhibit.html
Misattribution in virtual groups. JB Walther & N Bazarova (2007). Human Communication Research, 33, 1-26. http://www.msu.edu/~jwalther/vita/pubs/Misattribution.pdf
Psychological Assessment via the Internet: A Reliability & Validity Study of Online (vs Paper-&-Pencil) Versions of the General Health Questionnaire-28 (GHQ-28) & the Symptoms Check-List-90-Revised (SCL-90-R) MA Vallejo, CM Jordán, MI Díaz, MI Comeche, J Ortega J Med Internet Res 2007 (Jan 31); 9(1):e2 http://www.jmir.org/2007/1/e2/
CRISIS / DISASTERS
Virginia Campus Shootings: Coverage Resources, Poynter Online https://www.poynter.org/content/content_view.asp?id=121505
Coping with Disaster/Stress links http://www.acha.org/info_resources/links_coping.cfm
Tragedy at Virginia Tech collection of VA Government Web sites related to the shooting at VT
http://www.archive-it.org/collections/649
Resource page for teachers, students, physicians, children, & teens to help cope with disasters such as the campus shooting at VT http://www.aap.org/featured/resourcepage.htm
The Journal of Health Care for the Poor and Underserved, produced by Meharry Medical College, released a special issue on the Public Health Implications of Hurricanes Katrina, Rita and Wilma. The president of Meharry, Wayne Riley, M.D., M.P.H., wrote an opening commentary called "Hurricanes Katrina and Rita: Professionally Fulfilling, Personally Painful." A Riley interview is linked to http://www.kaisernetwork.org/health_cast/hcast_index.cfm?display=detail&hc=2144
Katrina (Internet Archive) list of Websites compiled by The Internet Archive & individuals as historical record of the devastation & relief effort. http://www.archive-it.org/collections/174
How Schools Can Help Students Recover from Traumatic Experiences A Tool Kit for Supporting Long-Term Recovery Summary at http://www.rand.org/pubs/technical_reports/TR413/
Fulltext http://www.rand.org/pubs/technical_reports/2006/RAND_TR413.pdf
E-HEALTH / HEALTH INFO TECHNOLOGY (HIT) HEALTH INFORMATICS
Press Release with links at http://ec.europa.eu/information_society/newsroom/cf/itemdetail.cfm?item_id=3346 Most of the countries surveyed for the report have published specific e-health strategies, roadmaps, or action plans closely aligned with the priorities set out in the 2004 e-Health Action Plan ( for national e-health infrastructure systems, EHRs & interoperability).
Today’s e-patients handout by Susannah Fox http://www.pewinternet.org/files/Fox_Ix_Handout_Sept04.pdf
Term Identification Methods for Consumer Health Vocabulary Development QT Zeng, T Tse, G Divita, A Keselman, J Crowell, A Browne, S Goryachev, L Ngo JMIR 2007 (Mar 14); 9(1):e4 http://www.jmir.org/2007/1/e4
Assessing Consumer Health Vocabulary Familiarity: An Exploratory Study A Keselman, T Tse, J Crowell, A Browne, L Ngo, Q Zeng J Med Internet Res 2007 (Mar 14); 9(1):e5 http://www.jmir.org/2007/1/e5
"Infodemiology" (or information epidemiology) is a "new research discipline & methodology [which deals with] the study of the determinants & distribution of health information". Gunther Eysenbach coined the term "Infodemiology", & won a Distinguished Paper in Nov 2006,. http://www.ehealthinnovation.org/node/204
He shows a correlation between flu-related searches on Google & flu-incidence data.
Slides at http://yi.com/home/EysenbachGunther/talks/amia-14-11-2006.ppt
Paper at http://yi.com/home/EysenbachGunther/publications/2006/eysenbach2006c-infodemiology-amia-proc.pdf
Results of a Global Online Survey of Healthcare Bloggers Dec 2006 (49 p.)
http://www.envisionsolutionsnow.com/pdf/Studies/Healthcare_Blogger_Survey_Report.pdf
Picker Institute research for the UK Dept of Health found that too often services supposed to help people at a time of real need instead throw them back on their own resources, requiring them to invest considerable time, effort and determination in order to get hold of information that is relevant to their circumstances.
Accessing information about health and social care services (Apr 2007, 108 p. report) at http://www.pickereurope.org/Filestore/Publications/Information_access_final_web.pdf
http://www.pickereurope.org/Filestore/Downloads/At_a_Crossroads_Without_Signposts_information_report_summary_Apr07.pdf
News release at http://www.pickereurope.org/Filestore/Downloads/News_release_access_to_information_for_health_and_social_care_service_users.pdf
Brief at http://www.pickereurope.org/Filestore/Downloads/At_a_Crossroads_Without_Signposts_information_report_summary_Apr07.pdf
Bodies Online Information and advice-seeking in the health and fitness domain. ESRC E-Society Programme
http://www.york.ac.uk/res/e-society/projects/9/9briefingdoc.pdf
http://www.york.ac.uk/res/e-society/projects/9.htm
Intel: Bridging the Distance from Doctor to Patient (video) re:researchers trying to help drs reach their patients by Internet. http://news.com.com/1606-2_3-6170044.html?tag=ne.video.6170044
Exploration of the Construct of Reliance among Patients Who Talk with Their Providers About Internet Information CL. Bylund, CM. Sabee, RS. Imes, AA Sanford The effect of the internet on patients' ability to seek health information & on the clinical relationship. http://www.gwu.edu/%7Ecih/journal/JHClink/v12n1_bylund.pdf
A Website to Improve Asthma Care by Suggesting Patient Questions for Physicians: Qualitative Analysis of User Experiences CW Hartmann, CN Sciamanna, et al JMIR 2007 (Feb 07); 9(1):e3 http://www.jmir.org/2007/1/e3/
Online Medical "Visits": Good Idea? On The Early Show Dr. Rick Kellerman, AAFP president, pres. of the American Academy of Family Physicians, went through the advantages and disadvantages, etc. AAFP has been studying electronic visits and recommends patients conduct consultations with their personal physicians who have access to their medical records, Kellerman said. (Smith, "The Early Show," CBS, 4/30). A video of the segment is available online. http://www.cbsnews.com/stories/2007/04/30/earlyshow/health/main2740075.shtml
Concept-based electronic health records: opportunities and challenges S Ebadollahi et al Proceedings of the 14th ACM international conference on Multimedia MULTIMEDIA '06 ACM Press Oct 2006 http://delivery.acm.org/10.1145/1190000/1180859/p997-ebadollahi.pdf?key1=1180859&key2=0486247711&coll=&dl=acm&CFID=15151515&CFTOKEN=6184618
Consumer Control of Electronic Personal Health Information: What Does It Mean? Why Is It Important? A Report on 3 Consumer Focus Group Meetings Convened in Oct, 2005 by the Office of the Asst Secretary for U.S. DHHS Mar 1, 2006 http://aspe.hhs.gov/sp/07/consumer/index.htm
Improving the Quality of Healthcare through Health Information Exchange. Selected findings from the eHealth Initiatives 2006 3d Annual Survey of Health Information Exchange at State, Regional & Community Levels 9/25/06 http://toolkit.ehealthinitiative.org/assets/Documents/eHI2006HIESurveyReportFinal09.25.06.pdf
Personal Health Records: Empowering Consumers http://www.himss.org/content/files/phr_empowering_cons.pdf
OR www.himss.org/ASP/ContentRedirector.asp?ContentID=66599
EHR still top health IT priority: survey. Modern Healthcare Online article by J Conn Mar 16, 2007 http://www.modernhealthcare.com/apps/pbcs.dll/article?AID=/20070316/FREE/70316003/1029/FREE
Keeping it Personal: Health Information You Can Trust (Slides) http://www.ahima.org/hipsweek/2007HIPSWeekPPT.ppt
“Skilling Up” for Patient-Centered E-Health. E. Vance Wilson, U WI-Milwaukee PPT
http://www.cgu.edu/include/Wilson.pdf
Common examples of healthcare IT failure www.ischool.Drexel.edu/faculty/ssilverstein/medinfo.htm. http://www.healthleadersmedia.com/magazine/view_magazine_feature.cfm?content_id=87842&category_id=155
Telemedicine in the Ambulatory Setting: Trends, Opportunites & Challenges (FCG Emerging Practices Mar 2007 15 p.) reviews/discusses remote consulting & home monitoring. http://www.fcg.com/research/serve-research.aspx?rid=335
HHS (HRSA) Telehealth homepage http://www.hrsa.gov/telehealth/
GAMES / GAMING
Video Gaming: General and Pathological Use Harris Interactive & Douglas Gentile examine general use & the damaging pathological use of video games among young people. http://www.harrisinteractive.com/news/newsletters/k12news/HI_TrendsTudes_2007_v06_i03.pdf
The State of the Console http://www.nielsenmedia.com/nc/nmr_static/docs/Nielsen_Report_State_Console_03507.pdf
re: Nielsen Videogame Reach . Article by J Mandese, Mar 16, 2007 http://publications.mediapost.com/index.cfm?fuseaction=Articles.showArticleHomePage&art_aid=57208
GLOBAL
Appropriate information-communications technologies for developing countries Bulletin of the WHO V85# 4, Apr 2007, 245-324 CC Missen, TM Cook http://www.who.int/bulletin/volumes/85/4/07-041475/en/index.html
INTERNET USE / IT / ICT / INFORMATION RESEARCH /INFORMATICS/ INFORMATION SEEKING / INTERNET ACCESS
PEW statistics Apr 2007: 36% of online American adults consult Wikipedia (esp well-educated & current college-age students) http://www.pewinternet.org/pdfs/PIP_Wikipedia07.pdf
Caught in the NET: A Survey of Raleigh-Durham Area Residents 40+ About Online Use and Safety by JH Sauer (AARP Report, Oct 2006 22p.) Full Report at http://assets.aarp.org/rgcenter/consume/nc_rd_cyber_2006.pdf
About the report+links: http://www.aarp.org/research/technology/onlineprivacy/nc_rd_cyber_2006.html
A review of national information & communication technologies (ICT) & a proposed National Electronic Initiative Framework (NEIF) by AR Peslak (orig May 2006) First Monday
http://www.firstmonday.org/issues/issue11_5/peslak/index.html
A review of national information and communication technologies (ICT) and a proposed National Electronic Initiative Framework (NEIF) by Alan R. Peslak (originally published in May 2006) First Monday
http://www.firstmonday.org/issues/issue11_5/peslak/index.html
The Face of the Web Study IIpsos Insight) Apr 19, 2007: Prevalence of Internet Access Technology among Global Internet Users: 2003 vs. 2006 (Ipsos Insight, 2007) The # of Internet adults utilizing ‘wired’ broadband connections may be peaking according to results of the annual study. http://www.ipsosinsight.com/knowledge/techcomm/products/FOW.aspx
CHART: Prevalence of Internet Access Technology amg Global Internet Users: 2003 vs. 2006
http://www.ipsos-na.com/news/act_hit_cntr.cfm?id=3443&Region=us&PDF_name=mr070418-1chart1.pdf
State of the Blogosphere/State of the Live Web, April 2007 by Technorati (David Sifry) http://www.sifry.com/alerts/archives/000493.html
Users' information behaviour - a gender perspective" Steinerová, J. & Šušol, J. (2007) Information Research, 12(3) paper 320 at http://InformationR.net/ir/12-3/paper320.html] See, esp., bibliography
Online tutorial: Mastering Google for Health Information 12 minute tutorial from UBC Physio Info-blog
http://weblogs.elearning.ubc.ca/physio/2007/02/mastering_google_for_health_in.php
The Usability Toolkit from the Society for Technical Communication http://www.stcsig.org/usability/resources/toolkit/toolkit.html
Usability and User Experience Resources Web Sites and Other Resources http://www.stcsig.org/usability/resources/research_sites.html
MARKETING / ADVERTISING
Digital Marketing & Media (2d Annual Digital Fact Pact, Adage 2007) Behavioral Targeting, p. 6; Top 5 health sites p. 20, Consumer Internet User stats p. 29, other http://adage.com/images/random/digitalfactpack2007.pdf
Marketing Violent Entertainment to Children. A Report to Congress, Apr 2007 FTC, 138 p. http://www.ftc.gov/reports/violence/070412MarketingViolentEChildren.pdf
FTC web site on entertainment ratings http://www.ftc.gov/ratings/
Food for Thought: Television: Food Advertising to Children in the United States released by The Kaiser Family Foundation is the largest study conducted of TV food advertising to children. Content analysis of TV ads & detailed data re: children’s viewing habits for an estimate of the # & type of TV ads seen by children of various ages. The News releases, summary, & webcast are at http://www.kff.org/entmedia/entmedia032807pkg.cfm . See also http://www.kff.org/entmedia/7618.cfm
The effects of online advertising S McCoy, A Everard, P Polak, DF Galletta, Communications of the ACM V50, #3 (2007), p. 84-88 http://delivery.acm.org/10.1145/1230000/1226740/p84-mccoy.html?key1=1226740&key2=0990774711&coll=&dl=ACM&CFID=15151515&CFTOKEN=6184618
Modeling and Measuring the Impact of Fear, Guilt and Shame Appeals on Persuasion for Health Communication: A Study of Anti-Alcohol Messages Directed at Young Adults D Merunka, I Becheur, H Dib & P Valette-Florence, Fe 2007 http://papers.ssrn.com/sol3/papers.cfm?abstract_id=963593 NOTE: scroll to bottom to get fulltext free
5 Technology Trends Impacting Consumer & Physician Marketing (Manhattan Res 2007 Opinion Leader Roundtable) http://www.manhattanresearch.com/files/opinion_leader_roundtable/Manhattan_Research_Roundtable_2007.pdf
MASS COMM / MASS MEDIA / JOURNALISM / CAMPAIGNS
Media credibility and cognitive authority. The case of seeking orienting information Savolainen, R. (2007). Information Research, 12(3) paper 319 at http://InformationR.net/ir/12-3/paper319.html
Online News Credibility: An Examination of the Perceptions of Newspaper Journalists
William Cassidy JCMC V12# 2 Jan 2007 http://jcmc.indiana.edu/vol12/issue2/cassidy.html
7 Words (and more) You Shouldn't Use in Medical News (Health News Review)
http://www.healthnewsreview.org/view_content/detail.php?type=Theme&id=25
Hard or Soft Searching? Electronic Database versus Hand Searching in Media Research by SC Roy, G Faulkner & SJ Finlay http://www.qualitative-research.net/fqs-texte/3-07/07-3-20-e.htm
What journalists can do in the fight against TB SciDevNet 23 March 2007 http://www.scidev.net/Editorials/index.cfm?fuseaction=readEditorials&itemid=213&language=1
Race, Riches & Reporters – Do Race and Class Impact Media Rape Narratives? An Analysis of the Duke Lacrosse Case S.Illinois U Law Review http://papers.ssrn.com/sol3/papers.cfm?abstract_id=968450
Hollywood, Health & Society (HH&S) is a project at the USC Annenberg Norman Lear Center with funding from HHS agencies that provides entertainment industry professionals with information for health storylines http://www.learcenter.org/html/projects/?cm=hhs & http://learcenter.org/html/projects/?cm=hhs/faq
RISK COMM/ SAFETY / UNCERTAINTY / CRISIS COMM / RISK / CRISIS COMMUNICATION
Cancer Risk: Understanding the Puzzle interactive site is to help make informed decisions about how to lower risk http://understandingrisk.cancer.gov